Links to Useful Resources about Crohn's Disease, Colitis and IBS

Listed below are a number of website links of genuine interest related to digestive conditions.

http://www.crohns.org.uk/

Crohn's.Org is packed with information from Professor John Hunter

This website is a resource for the management and treatment of Crohn’s Disease and other Inflammatory Bowel Diseases designed to help both patients and healthcare professionals.

Inflammatory bowel disease encompasses many forms including Crohn’s disease and Ulcerative Colitis. These are chronic diseases, which may reoccur. Many different forms of treatment are available that lead to long remissions, but at present no immediate cure exists.  The aim is to keep symptoms completely under control so that patients can lead a full life.


http://www.nacc.org.uk/content/home.asp

The National Association for Colitis and Crohn's Disease (NACC) brings together people of all ages who have Crohn's Disease or Ulcerative Colitis, which includes Proctitis, their families and the health professionals involved in their care. These two illnesses are both forms of Inflammatory Bowel Disease (IBD) and they affect about 1 in 400 people in the United Kingdom.

 http://www.theguttrust.org/

The Gut Trust  - the national charity for people with Irritable Bowel Syndrome in the United Kingdom. They support people who are coping day to day with IBS; a condition that is misunderstood, often stigmatised and which can chronically affect your everyday life.

They support people with IBS in many ways: they offer a free telephone helpline staffed by specialist nurses; provide factsheets, online support, toilet access cards, as well as a quarterly journal, internet forums and a unique Self Management programme to help you live life to the full with IBS.


http://www.cicra.org/

CICRA (Crohn's in Childhood Research Association) is dedicated to creating a wider understanding of Crohn's Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD  ), particularly as it affects children and young adults.

 http://www.coeliac.org.uk/

Coeliac UK is the leading charity working for people with coeliac disease and dermatitis herpetiformis (DH). Their mission is to improve the lives of people living with the condition through support, campaigning and research.

Anyone who has been medically diagnosed with coeliac disease can join the Charity.

http://www.corecharity.org.uk/

Core is the only charity in the UK that funds research into the entire range of gut, liver, intestinal and bowel illnesses.

The charity was established in 1971 with the help and support of the British Society of Gastroenterologists and today it supports Clinical Research Fellows and Research Scientists at hospitals and universities throughout the UK, investigating conditions such as pancreatitis, hepatitis, ulcerative colitis, irritable bowel syndrome, Crohn’s disease and digestive cancers.

 http://www.efcca.org/index.php

European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) aim is to improve the well being of patients with inflammatory bowel disease - i.b.d. and their partners and families.

Following the identification of IBD as a recognisable chronic illness, specific self-help groups began to appear cross Europe. By the mid 1980s, most of the groups had been formed which now constitute the principal European National Associations for Crohn's and Colitis patients. Further development of these organisations has reflected the growth of IBD diagnosis, the increasing visibility of the benefits of self-help associations and their increasing roles.

PARA

The Paratuberculosis Awareness and Research Association (PARA) is a nonprofit organization comprised of lay persons with Crohn's disease, their families and friends. PARA was formed because we became aware of scientific evidence suggesting an infectious organism -- a bacterium known as Mycobacterium avium subspecies  paratuberculosis (MAP) -- may be causing Crohn's disease.

Research that shows that MAP may be transmitted to humans through foods derived from cattle with MAP  infection, known as Johne's Disease.  (The most extensive web site about Johne's Disease is the Johne's Disease Information Center

 

Great Taste. No Pain!